Sickle cell disease care is unevenly distributed across regions in New York State

A new study found that sickle cell disease care is unevenly distributed across regions in New York State, with New York City having the largest proportion of hospitalizations and Long Island having the highest charges for care. Hospital stays were longer in other areas with less access to specialized care.
Sickle cell disease (SCD) affects approximately 10 percent of people with the condition in the US, who live in New York State. Researchers analyzed data from 42,271 SCD hospitalizations from 2009 to 2022. New York City accounted for the largest proportion of hospitalizations, while Long Island had the highest charges for care. Hospital stays were longer in Central New York and Hudson Valley. Most hospitalized patients were Black (83 percent) and young adults (18-29 years old) made up the largest proportion of hospitalizations (40 percent). Hospitalizations for severe illness grew over time, coinciding with the COVID-19 pandemic.
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